The Mother’s Day posts are in full bloom on social media and say what you want about the algorithm but mine gets me. I forward Rush a video about how the greatest gift you can give your wife this year is to leave her alone, preferably in a dark room with a sound machine on. I make my three nearly-grown girls, gathered around my bed where I’ve been since 7:00 p.m., watch another on how a class of first-graders describe their moms: My mom likes being on the couch. My mom doesn’t like noise. My mom hates ekercize. It’s me, right? I gleam. I want my girls to see and accept and even delight in my limited capacities. One of them, maybe, musters a chuckle.
Learning to celebrate our limits—and how those limits can make us larger—is at the heart of friend and author Jessica Slice’s brilliant new book, Unfit Parent: A Disabled Mother Challenges an Inaccessible World. In it, Jessica seeks to “share the deep wisdom disability culture offers and how it could altar parenthood for everyone.” Under this broad welcome, she creates room for all of us to consider how impossible it is to parent without adequate social supports and how those who have been marginalized by the system quite often hold the map to repairing it. Disability reminds us of our collective frailty, yes, but also our collective interdependence. Limits are how we belong.
Since being identified as autistic last year, I’ve been hesitant to call myself disabled. I’m wrestling with my relationship to disability and whiteness. I’m wrestling with my relationship to disability and perimenopause. I’m wrestling with my relationship to accepting my limits and, yes, being capable of more ekercize. I imagine it might feel good to lift a weight or two in the next decade. In the meantime, I’ll be in bed with Jessica’s book, feeling seen and accepted and even delighted in.
Erin Lane: What is your favorite thing about being an adult?
Jessica Slice: Anyone who has been lucky enough to attend therapy has learned that when we are young, we believe what we are told about the world in order to survive. It’s maladaptive to question authority before a certain age. But it’s adaptive once you’re older. I love that as an adult, I get to decide what is true and reasonable.
Erin: You wrote a book called Unfit Parent! Tell us! What shitty script were you trying to tear up?
Jessica: Consumerism, perfectionism, and our collective (reasonable) fear of suffering tell us that a parent must be superhuman. All parents fall short of these standards, but it’s even more obvious when you’re disabled. Child removal, erasure, and lack of access all send the message that disabled parents are an inferior and inadequate version of regular parents.
Erin: Okay. Now flip it. What truer, weirder story did you set out to write instead?
Jessica: Disabled parents are the standard-bearers of a beautiful, creative, and innovative version of interdependence. Because the systems rejected us, we get to form a new path. And that path can offer a way out for everyone. Parenthood doesn’t need to be immaculate. It just needs to be honest.
Erin: Writing—and Christianity—is about the threat of resurrection. What is the scariest thing about bringing this book to life?
Jessica: I didn’t realize how I would be worried about two opposite things at the exact same time: that people would read it and wouldn’t read it. I’ve felt a little scattered in the weeks since its release. Like there are these facsimiles of me all around the world. A writer friend told me that I don’t have to understand my own emotions about the book for three years, and that seems like the right amount of time to process this.
Erin: Publishing a book is a shiny milestone! What is something less shiny about a life well-lived you’re celebrating this week?
Last night, our whole family (two adults, an 8-year-old, and a baby) spent 45 minutes watching the people who live across the laneway try to put a giant rock inside a dumpster. They took many approaches, some dangerous, and when they finally succeeded, we all clapped and cheered from inside our house.
P.S. Want to celebrate Jessica for doing her work and sharing her story? If so, consider joining me in donating to one of her favorite non-profits, the Southern Poverty Law Center.
P.P.S. Fun Fact: You may remember Jessica from Chapter 4 of my own book, Someone Other Than a Mother. Click here for more of her story—and how she gave me the best parenting compliment of all time: “Well, if you can do it, I don’t see why I can’t.”
P.P.P.S. Are you a disabled parent? What are you learning from disabled parents? What’s one thing you’re doing to reject perfection for yourself or your people? Tell me your tiny kazoos (a.k.a. tiny victories) in the comments below.